Pediatric Rheumatology Page

All information is provided as a public service and no warranty is expressed or implied.

dedicated to kids with arthritis

KEY WORDS:

arthritis

scleroderma

childhood arthritis

dermatomyositis

JRA

juvenile rheumatoid arthritis

Kawasaki Disease

pediatric rheumatology

polyarteritis nodosa

SLE

systemic lupus erythematosus

vasculitis

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Information about juvenile rheumatoid arthritis

More Information about childhood arthritis

Information about systemic lupus erythematosus

Does your child have “growing pains”?

Information about other childhood rheumatic diseases

Can we cure childhood rheumatic diseases?

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Is your child getting the best care??

My book
It’s not just growing pains.
A guide to childhood muscle, bone, and joint pain,
rheumatic diseases and the latest treatments
A guide for parents and professionals

 

Reviewer’s comments

    Dr. Tom Lehman’s experience and compassion are evident on every page of this book, and they help guide the reader—child, parent, and healthcare professional alike – through the world of childhood arthritis.  This book is an absolute gem written with a single goal in mind:  improve the lives of kids with arthritis. -- Jack Klippel, M.D. President and CEO of the Arthritis Foundation

     “Dr. Lehman has given parents and families of children with arthritis the first book that speaks to the parent and child as equals.  His book explains the illnesses, the medications, the lab tests, and the disease course in simple, understandable lay language and givens them valuable insight into how a pediatric rheumatologist thinks.  Bravo!”-- Charles Spencer, M.D., Professor of Clinical Pediatrics, University of Chicago, La Rabida


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More reviewers’ comments on It’s Not Just Growing Pains

     "A must have for any family with a child who has a rheumatic disease! I personally found this book to very informative. Dr. Lehman, as always, gives families a clear understanding of their choice of treatments and what they can expect from their child's rheumatic disease."Kathy Gaither, Juvenile Scleroderma Network, Inc.

     "This comprehensive guidebook is a must-read for pediatricians and health care professionals who treat children and adolescents. For parents of children who have already been diagnosed with rheumatic disease, as well as children who have baffling, undiagnosed symptoms, this book will be a valuable resource."Enid Engelhard, CSW, Director of Social Services, S.L.E. Foundation, Inc.

    Navigating the health care system as an adult can be daunting, but doing so with a child who has a rheumatic disease can be a particularly anxiety-provoking experience for the entire family. Education is the key to understanding and to reducing the stress and fear that goes along with caring for an ill child. Dr. Lehman's book provides a thorough explanation of disease process, therapeutics, diagnostics and coping strategies all in a very friendly easy to read manner. The Scleroderma Foundation is excited about this guide and believes that it would be a great addition to the family library and to providing the insight necessary to becoming an informed, effective partner in their child's care."--Donna Kohli, President & CEO, Scleroderma Foundation

 

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It has always been a frustration trying to answer the many questions I have received from people over the web.  I can’t take the time and give them the detail I would like to.  I have to take care of my patients.  This book is a distillation of my experience answering questions for parents and health professionals over 25 years of practice.  If you want to know about the diseases, the tests, the medications, or how to be sure you are getting the best care– If you are the family member of a child with joint pains, this book will give you the answers.  If you are a general physician, a pediatrician, or a nurse who cares for children with these diseases it will answer many of the questions families ask you, and you can recommend it to them.  It will also answer many of your questions about what shots to give, what precautions to take, and the other questions families, pediatricians, and other health care providers have asked me over the years.

The major cause of poor outcomes for children with rheumatic diseases in the United States today is the delay in getting the proper diagnosis and the proper treatment.  The majority of children under the care of an experienced pediatric rheumatologist do well.  For too many children it took too long to get to an experienced pediatric rheumatologist.  Fireman are great at putting out fires, but if you want to prevent the house from burning down you have to call them at the first sign of a fire, not wait until you’re sure you are in trouble.  With proper medication we can stop most rheumatic diseases, but we can’t always repair all the damage that was done before the child got to us.  I want people to read my book so they can be sure they are getting the proper care for their children.  Then I want them to share the book with their doctors so their doctors can be sure they are giving children the proper care.

 

 

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PLEASE NOTE: It is not possible for Dr. Lehman to provide individual medical advice over the Internet. Every patient and family must find a physician they are comfortable with. If you are uncomfortable with your present physician you may get help in finding a new one from your local office of the Arthritis Foundation or other community organizations.

 This page is provided by Thomas J. A. Lehman MD

 Dr. Lehman is the author of many textbook chapters and articles on the care of children and young adults with rheumatic disease.  He practices in New York City.  Click here for more information about Dr. Lehman or the Hospital for Special Surgery.

 

  Dr. Lehman’s goal has always been

Giving the best care with great care

This site provided by Thomas J. A. Lehman MD
Chief, Division of Pediatric Rheumatology
The Hospital for Special Surgery
535 E 70 St,
New York, NY 10021
212-606-1151, fax 212-606-1938, e-mail
goldscout@aol.com

Design help by Megan A. Taupier
e-mail

 Last updated 6/27/07

 Systemic lupus erythematosus, dermatomyositis, Scleroderma, progressive systemic sclerosis, pss, jra, juvenile rheumatoid arthritis, childhood arthritis, growing pains, rheumatism, children with pain, bone pain, pediatric specialists, my child hurts, chronic disease, chronic childhood illness, the best care, Kawasaki disease, mixed connective tissue disease, SLE, JCA, JIA, juvenile chronic arthritis,  sports injuries, frequent sports injuries, cyclophosphamide, Methotrexate, diclofenac, voltaren, Relafen, children’s health care, educational materials, pediatric resources, public health education, health education, school nurse materials, help for school nurses.

 

 

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systemic lupus erythematosus
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