Raynaud’s Phenomenon
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best care - with great care
Dr. Lehman is the author
of many textbook chapters and articles on the care of children and young adults
with Raynaud’s and associated rheumatic diseases. He practices in
All information is provided as a public service and no warranty is expressed or implied.
Raynaud’s is described as Raynaud’s disease, Raynaud’s
phenomenon, or Raynaud’s syndrome. Although some people carelessly use these
terms interchangeably, these aren’t all the same thing. What’s going on? It helps to know a little history. Raynaud was a French medical student in the
late 1800’s who had to write a thesis as one of the requirements for
graduation. He decided to write about
the color changes he saw in the hands of women waiting for the streetcar on
cold winter days. In true Raynaud’s a
persons fingers will blanch white when they are very cold and there is little
or no blood circulating to the fingers.
As the hands warm up the blood flow returns and the fingers turn
red. After this they go back to their
normal condition which is usually bluish and cold with poor circulation. Unless the fingers turn all three colors it
is not Raynaud’s. This same sequence of
color changes can be provoked by emotion in some people (like flushing when you
are embarrassed). It may also occur in
the toes and infrequently in the ears and nose, etc. when they become cold.
Raynaud’s
phenomenon describes the color changes.
When they occur without any other problem it is called Raynaud’s
disease. However if the color changes
occur in someone who has another rheumatic disease then it is called Raynaud’s
syndrome. Raynaud’s disease is a minor
inconvenience, which is not terribly important.
Raynaud’s syndrome is significant because of whatever disease it is
associated with.
Many
people come to medical attention because of Raynaud’s and it is not initially
clear whether they have an underlying rheumatic disease or simply Raynaud’s
disease. Almost any rheumatic disease
can be associated with Raynaud’s.
Rheumatoid arthritis, scleroderma, systemic lupus erythematosus, and
dermatomyositis all may be associated with Raynaud’s. The most important thing is for anyone with
Raynaud’s to be carefully evaluated to make sure there is no evidence of an
underlying disease. This can be done by
taking a good history, doing an appropriate physical exam, and by doing
appropriate laboratory testing.
Sometimes
a child has Raynaud’s for many years before a diagnosis of an underlying
disease can be made. There are some
guidelines that doctors use. If
everything is normal there is a less than 10% risk of a disease becoming
evident over time (note these figures are very rough and based on only a single
study). If there is also a positive ANA
the risk rises to about 25%. If there
are nail fold capillary changes on exam the risk is much higher. A few people have distal finger tip pits and
they usually do in fact have disease.
If you
think you have Raynaud’s you should be carefully evaluated by an experienced
rheumatologist. For more information see
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If you want to know about the diseases, the tests, the medications, or
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Dr. Lehman is
the author of many textbook chapters and articles on the care of children and
young adults with rheumatic diseases including SLE, JRA, dermatomyositis,
scleroderma, Kawasaki disease and related conditions. He practices in New York City. Click here for more
information about Dr. Lehman or the Hospital for Special Surgery.
This site provided by Thomas J. A. Lehman MD
Chief, Division of Pediatric Rheumatology
The Hospital for Special Surgery
535 E 70 St,
212-606-1151, fax 212-606-1938, e-mail goldscout@aol.com