Raynaud’s Phenomenon

This page is provided by Thomas J. A. Lehman MD

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 Dr. Lehman is the author of many textbook chapters and articles on the care of children and young adults with Raynaud’s and associated rheumatic diseases.  He practices in New York City.  Click here for more information about Dr. Lehman or the Hospital for Special Surgery.

All information is provided as a public service and no warranty is expressed or implied.

If you would like a more detailed discussion click here for information regarding a book I have written.

 

Raynaud’s is described as Raynaud’s disease, Raynaud’s phenomenon, or Raynaud’s syndrome.  Although some people carelessly use these terms interchangeably, these aren’t all the same thing.  What’s going on?  It helps to know a little history.  Raynaud was a French medical student in the late 1800’s who had to write a thesis as one of the requirements for graduation.  He decided to write about the color changes he saw in the hands of women waiting for the streetcar on cold winter days.  In true Raynaud’s a persons fingers will blanch white when they are very cold and there is little or no blood circulating to the fingers.  As the hands warm up the blood flow returns and the fingers turn red.  After this they go back to their normal condition which is usually bluish and cold with poor circulation.  Unless the fingers turn all three colors it is not Raynaud’s.  This same sequence of color changes can be provoked by emotion in some people (like flushing when you are embarrassed).  It may also occur in the toes and infrequently in the ears and nose, etc. when they become cold.

 

Raynaud’s phenomenon describes the color changes.  When they occur without any other problem it is called Raynaud’s disease.  However if the color changes occur in someone who has another rheumatic disease then it is called Raynaud’s syndrome.  Raynaud’s disease is a minor inconvenience, which is not terribly important.  Raynaud’s syndrome is significant because of whatever disease it is associated with.

 

Many people come to medical attention because of Raynaud’s and it is not initially clear whether they have an underlying rheumatic disease or simply Raynaud’s disease.  Almost any rheumatic disease can be associated with Raynaud’s.  Rheumatoid arthritis, scleroderma, systemic lupus erythematosus, and dermatomyositis all may be associated with Raynaud’s.  The most important thing is for anyone with Raynaud’s to be carefully evaluated to make sure there is no evidence of an underlying disease.  This can be done by taking a good history, doing an appropriate physical exam, and by doing appropriate laboratory testing.

 

Sometimes a child has Raynaud’s for many years before a diagnosis of an underlying disease can be made.  There are some guidelines that doctors use.  If everything is normal there is a less than 10% risk of a disease becoming evident over time (note these figures are very rough and based on only a single study).  If there is also a positive ANA the risk rises to about 25%.   If there are nail fold capillary changes on exam the risk is much higher.  A few people have distal finger tip pits and they usually do in fact have disease.

 

If you think you have Raynaud’s you should be carefully evaluated by an experienced rheumatologist.  For more information see My book below.

 

My book –click here to order at a discount from Amazon.com!!

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"A must have for any family with a child who has a rheumatic disease! I personally found this book to very informative. Dr. Lehman, as always, gives families a clear understanding of their choice of treatments and what they can expect from their child's rheumatic disease."Kathy Gaither, Juvenile Scleroderma Network, Inc.

    Dr. Tom Lehmans experience and compassion are evident on every page of this book, and they help guide the readerchild, parent, and healthcare professional alike through the world of childhood arthritis.  This book is an absolute gem written with a single goal in mind:  improve the lives of kids with arthritis. -- Jack Klippel, M.D. President and CEO of the Arthritis Foundation

 

     Dr. Lehman has given parents and families of children with arthritis the first book that speaks to the parent and child as equals.  His book explains the illnesses, the medications, the lab tests, and the disease course in simple, understandable lay language and givens them valuable insight into how a pediatric rheumatologist thinks.  Bravo!-- Charles Spencer, M.D., Professor of Clinical Pediatrics, University of Chicago, La Rabida

 

It’s not just growing pains.
A guide to childhood muscle, bone, and joint pain,
rheumatic diseases and the latest treatments

 

Click here to see the table of contents

 

It has always been a frustration trying to answer the many questions I have received from people over the web.  I can’t take the time and give them the detail I would like to.  I have to take care of my patients.  This book is a distillation of my experience answering questions for parents and health professionals over 25 years of practice.  If you want to know about the diseases, the tests, the medications, or how to be sure you are getting the best care– If you are the family member of a child with joint pains, this book will give you the answers.  If you are a general physician, a pediatrician, or a nurse who cares for children with these diseases it will answer many of the questions families ask you, and you can recommend it to them.  It will also answer many of your questions about what shots to give, what precautions to take, and the other questions families, pediatricians, and other health care providers have asked me over the years.

 

Dr. Lehman is the author of many textbook chapters and articles on the care of children and young adults with rheumatic diseases including SLE, JRA, dermatomyositis, scleroderma, Kawasaki disease and related conditions.  He practices in New York City.  Click here for more information about Dr. Lehman or the Hospital for Special Surgery.

Click here if you are interested in making an appointment to see Dr. Lehman

 

I HOPE THIS INFORMATION IS USEFUL TO YOU.

This site provided by Thomas J. A. Lehman MD
Chief, Division of Pediatric Rheumatology
The Hospital for Special Surgery
535 E 70 St,
New York, NY 10021
212-606-1151, fax 212-606-1938, e-mail goldscout@aol.com

 

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