There are many forms of arthritis which affect children and
young adults. Simply saying a child has JRA is not enough. It’s like being told you are being given a
dog. Sounds useful until you go home and
wonder whether it’s a cocker spaniel or a St Bernard, old or young, friendly or
You quickly realize you don’t have nearly enough information. On the following pages I have provided
information which I make available to patients and families at the Hospital for
Special Surgery in New
This page is provided by Thomas J. A. Lehman MD
best care - with great care
Dr. Lehman is the
author of many textbook chapters and articles on the care of children and young
adults with rheumatic diseases. He
practices in New York City. Click here for more information about Dr. Lehman or
the Hospital for Special Surgery.
child have “growing pains”?
Causes of back pain in children
My recently published book
off today at Amazon.com
not just growing pains.
A guide to childhood muscle, bone, and joint pain,
rheumatic diseases and the latest treatments:
A guide for parents and professionals
Press 418 pages, June 2004
experience and compassion are evident on every page of this book, and they help
guide the reader—child,
parent, and healthcare professional alike – through the world of childhood arthritis. This book is an absolute gem written with a
single goal in mind: improve the lives
of kids with arthritis.” -- Jack Klippel, M.D. President and
CEO of the Arthritis Foundation
“Dr. Lehman has given parents and families of children with
arthritis the first book that speaks to the parent and child as equals. His book explains the illnesses, the
medications, the lab tests, and the disease course in simple, understandable
lay language and givens them valuable insight into how a pediatric
rheumatologist thinks. Bravo!”-- Charles Spencer, M.D., Professor of Clinical Pediatrics, University of Chicago, La Rabida
"A must have for any family with a child
who has a rheumatic disease! I personally found this book to very informative.
Dr. Lehman, as always, gives families a clear understanding of their choice of
treatments and what they can expect from their child's rheumatic disease."—Kathy
Gaither, Juvenile Scleroderma Network, Inc.
"This comprehensive guidebook is a
must-read for pediatricians and health care professionals who treat children
and adolescents. For parents of children who have already been diagnosed with
rheumatic disease, as well as children who have baffling, undiagnosed symptoms,
this book will be a valuable resource."—Enid Engelhard, CSW, Director of Social
Services, S.L.E. Foundation, Inc.
Click here to order -- at Amazon.com
Click here to see the
table of contents
It has always been a frustration trying to
answer the many questions I have received from people over the web. I can’t take the time and give them the
detail I would like to. I have to take
care of my patients. This book is a
distillation of my experience answering questions for parents and health
professionals over 25 years of practice.
If you want to know about the diseases, the tests, the medications, or
how to be sure you are getting the best care– If you are the family member of a
child with joint pains, this book will give you the answers. If
you are a general physician, a pediatrician, or a nurse who cares for children
with these diseases it will answer many of the questions families ask you, and
you can recommend it to them. It will
also answer many of your questions about what shots to give, what precautions
to take, and the other questions families, pediatricians, and other health care
providers have asked me over the years.
major cause of poor outcomes for children with rheumatic diseases in the United States today is the
delay in getting the proper diagnosis and the proper treatment. The majority of children under the care of an
experienced pediatric rheumatologist do well.
For too many children it took too long to get to an experienced
pediatric rheumatologist. Fireman are great at putting out fires, but
if you want to prevent the house from burning down you have to call them at the
first sign of a fire, not wait until you’re sure you are in trouble. With proper medication we can stop most
rheumatic diseases, but we can’t always repair all the damage that was done
before the child got to us. I want people
to read my book so they can be sure they are getting the proper care for their
children. Then I want them to share the book with their doctors so their doctors
can be sure they are giving children the proper care.
Click here to order -- at Amazon.com
If you have continuing concerns
after reading these materials you may wish to contact your local office of the
Arthritis Foundation. The national office is in Atlanta, Georgia.
There is a new organization for
the parents of children with arthritis in the United Kingdom. The Children's Chronic
Arthritis Association can be reached at 47 Battenhall
Ave, Worcester England WR5 2HN telephone 01905 763556
There is also help available from
the Spondylitis Association of America P.O. Box 5872, Sherman Oaks, CA 91413
Help can also be
obtained from the Juvenile Scleroderma Network
and the Scleroderma Foundation
Dr. Lehman is
the author of many textbook chapters and articles on the care of children and
young adults with SLE. He practices in New York City. Click here for more information about Dr. Lehman or the Hospital for Special Surgery.
for The Lupus Foundation web page
The Arthritis Foundation also works with
children with lupus.
BOOKS dealing with childhood rheumatic diseases
This site provided by Thomas J. A. Lehman MD
Chief, Division of Pediatric Rheumatology
The Hospital for Special
535 E 70 St, New York,
212-606-1151, fax 212-606-1938, e-mail firstname.lastname@example.org
lupus erythematosus, dermatomyositis, Scleroderma, progressive systemic
sclerosis, pss, jra, juvenile
rheumatoid arthritis, childhood arthritis, growing pains, rheumatism, children
with pain, bone pain, pediatric specialists, my child hurts, chronic disease,
chronic childhood illness, the best care, Kawasaki disease, mixed connective
tissue disease, SLE, JCA, JIA, juvenile chronic arthritis, sports injuries, frequent sports injuries,
cyclophosphamide, Methotrexate, diclofenac, voltaren, Relafen, children’s health care, educational
materials, pediatric resources, public health education, health education,
school nurse materials, help for school nurses.
Revised 11 2005